INDIANAPOLIS — Mary Warlo has been extremely worried lately. Her baby Calieb, who is six months old, has sickle cell disease. In early December he went for a few days without liquid penicillin, a medication that he – and thousands of other children in the U.S. – rely on to prevent potentially life threatening infections.
FORT WORTH, Tex. — Monica Brown is used to hearing people say she looks young for her age. She’s 41, but feels decades older – mainly because of her struggle with sickle cell disease, a genetic disorder that affects her blood. “People say, ‘Oh you look so good,’ but they do not know what’s going
https://cpa.ds.npr.org/s4780019/audio/2022/06/sicklecelladults-feature-web.mp3 One night when Paul Gakpo was 9 months old, he fell sick and wouldn’t eat. His parents grew worried and rushed him to a nearby hospital the next morning. It was 1984. The doctors figured out baby Gakpo’s red blood cells were changing from the typical doughnut shape into the shape of a
Teonna Woolford has always wanted to have six kids. “I don’t know where that number came from. I just felt like four wasn’t enough,” Woolford said. “And I never wanted an odd number of children. I don’t know. Six is a good number.” https://cpa.ds.npr.org/s4780019/audio/2022/06/sickelcell-fertility-feature-web.mp3 Listen to this story here. Woolford was born with sickle cell
INDIANAPOLIS — Gary Gibson has a clear memory of his first conversation with his future wife Brenda Williams back in 1973. “Hello, my name is Brenda,” was the first thing Gibson remembers her saying. The second was, “I have sickle cell disease.” “I was like, sickle what?” Gibson said. https://cpa.ds.npr.org/s4780019/audio/2022/06/sicklecelldisease-story1-lackofresources-web.mp3 Listen to this story here.