Tag: inequities

Helping sickle cell patients starts with collecting better data

FORT WORTH, Tex. — Monica Brown is used to hearing people say she looks young for her age. She’s 41, but feels decades older – mainly because of her struggle with sickle cell disease, a genetic disorder that affects her blood. “People say, ‘Oh you look so good,’ but they do not know what’s going

When children with sickle cell grow up, they face a system not designed for them

https://cpa.ds.npr.org/s4780019/audio/2022/06/sicklecelladults-feature-web.mp3   One night when Paul Gakpo was 9 months old, he fell sick and wouldn’t eat. His parents grew worried and rushed him to a nearby hospital the next morning. It was 1984. The doctors figured out baby Gakpo’s red blood cells were changing from the typical doughnut shape into the shape of a

Getting fertility care is complex. It can be harder if you have sickle cell disease

Teonna Woolford has always wanted to have six kids. “I don’t know where that number came from. I just felt like four wasn’t enough,” Woolford said. “And I never wanted an odd number of children. I don’t know. Six is a good number.” https://cpa.ds.npr.org/s4780019/audio/2022/06/sickelcell-fertility-feature-web.mp3 Listen to this story here. Woolford was born with sickle cell