Tag: care coordination

When children with sickle cell grow up, they face a system not designed for them

https://cpa.ds.npr.org/s4780019/audio/2022/06/sicklecelladults-feature-web.mp3   One night when Paul Gakpo was 9 months old, he fell sick and wouldn’t eat. His parents grew worried and rushed him to a nearby hospital the next morning. It was 1984. The doctors figured out baby Gakpo’s red blood cells were changing from the typical doughnut shape into the shape of a